TOOLS TO HELP YOU
UNDERSTAND YOUR EoE

Living with eosinophilic esophagitis can
be quite a chore.
Take advantage of the
resources on this page to learn more.

Resources to Assist Your Treatment Journey

Whether it is help with talking to your doctor or specialist, learning more about EoE, or tracking your symptoms,
these downloadable resources have you covered.

Patient Brochure

Download

Doctor Discussion Guide

Download

Symptom Tracker

Download

I am

Have you been diagnosed with EoE by a physician?

What is the age of your loved one?

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Community Resources

The American Partnership for Eosinophilic Disorders (APFED)

APFED is a patient advocacy group started by a group of mothers of young children living with eosinophil-associated diseases. Their mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.

Campaign Urging Research for Eosinophilic Disease (CURED)

Started by Ellyn and Fred Kodroff after their daughter Jori was diagnosed with Eosinophilic Disease in 2003, CURED is committed to finding a cure for the disease—running fundraisers across the country to raise money to assist in research.

Glossary

B
Biopsy

The process of taking a sample of tissue from the body to examine it more closely. A biopsy of the esophagus is needed in order to properly diagnose eosinophilic esophagitis.

D
Dietary Therapy

Most commonly, EoE is caused by food allergens, eliminating certain allergens that trigger a response may help manage EoE symptoms. There are a few dietary strategies for this option—including elimination and elemental diets. Any dietary intervention should be done in consultation with a healthcare provider.

Dysphagia

Difficulty swallowing foods or liquids, arising from the throat or esophagus. One of the most common EoE symptoms.

E
Endoscopy

A procedure used to visually examine your upper digestive system done with the help of a tiny camera on the end of a long, flexible tube. A gastroenterologist uses an endoscopy to diagnose and sometimes treat conditions that affect the upper part of the digestive system.

Eosinophils

Normal type of white blood cells that are produced in the bone marrow and migrate to tissues throughout the body. When a foreign substance invades the body, eosinophils work with other white blood cells to release substances that neutralize the invader.

Eosinophilic Esophagitis (EoE)

A chronic immune disease where eosinophils and other immune cells build up in the lining of the esophagus that connects your mouth to your stomach, causing inflammation.

Esophageal Dilation

This procedure occurs during an endoscopy and opens the esophagus by stretching it out. While this method can help avoid use of topical steroids, it does not treat the underlying inflammation.

F
Food Elimination Diet Therapy

A frequent therapy used for patients with EoE that excludes common "trigger" foods from a patient's diet. These foods often include wheat, milk, egg, nuts, soy, fish, and shellfish.

G
Gastroenterologist

A medical doctor (specialist) that is qualified to diagnose and treat disorders related to the gastrointestinal system, which includes the mouth, throat, esophagus, and stomach, among other organs.

I
Immune system

The defense system that protects your body against harmful substances and invaders, such as bacteria and viruses. The immune system is made up of many different cell types and organs.

Inflammation

Your body's response to damage caused by bacteria, harmful substances, injury or trauma—of any kind, or other factors.

P
Proton Pump Inhibitors (PPIs)

Proton Pump Inhibitors are typically used to treat a range of gastrointestinal disorders including gastroesophageal reflux disease (GERD), but are also commonly used for EoE. They can alleviate EoE symptoms too.

S
Swallowed Topical Corticosteroids

In EoE, topical steroids are swallowed or inhaled to act directly on the esophagus to help dampen inflammation. Some are taken as a slurry—a liquid with a thickener, such as a sweetener, to help it taste better or a powder that requires an inhaler.

T
Type 2 Inflammation

A type of systemic allergic response that can result in increased inflammation in the esophagus, leading to difficulty swallowing and other symptoms.